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When Claire was diagnosed with Charcot-Marie Tooth (CMT) at 12 years old she was having regular appointments and physio sessions. But now, at 40, she hasn't had any consistent appointments since she moved to adult services 22 years ago. 🧡 "Living in Wick, in the Highlands, resources and knowledge about conditions like mine are limited to say the least," she said. By not having regular appointments, Claire doesn’t receive any guidance on how to manage her symptoms. Claire's 16-year-old son also
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