EB Research Partnership | LinkedIn
EB Research Partnership | LinkedIn
Jan 1, 2009
linkedin.com
What is EB?
What is EB?
Oct 24, 2017
ebresearch.org
This #EBAwarenessWeek, we need your help to make a BIG impact. Get involved, spread EB awareness, donate, and help us raise funds for life-saving research. Every dollar donated to EB Research Partnership’s #WingsofChange campaign will be DOUBLED up to $250,000. No action and no dollar amount is too small. We can ALL make a difference in the fight against EB. Join us. give.ebresearch.org/wingsofchange | Eddie Vedder
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This #EBAwarenessWeek, we need your help to make a BIG impact. G…
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How venture philanthropy helps us to expedite finding a cure for EB. #HealEB http://bit.ly/2Mq6dWB | EB Research Partnership
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How venture philanthropy helps us to expedite finding a cure for EB. …
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At EBRP, we have one bold audacious goal: heal and cure EB by 2030. In the process, we’re pioneering a model that can benefit the more than 400 million people affected by a rare disease. 🦋 The future is bright and with your support we can cure EB. Learn more and support here: ebresearch.org/ebrp_new | EB Research Partnership
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At EBRP, we have one bold audacious goal: heal and cure EB …
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I'm so excited to join EB Research Partnership TODAY at 4PM ET for #VentureIntoCures, a virtual event to raise awareness and find a cure for Epidermolysis Bullosa (EB). We’re coming together with lots of friends to #HealEB! Join us for free at 2022.VentureintoCures.org. | Kermit the Frog
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I'm so excited to join EB Research Partnership TODAY at 4PM ET for …
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Did you know? Epidermolysis Bullosa is often called "The Worst Disease You've Never Heard Of." This rare condition affects about 1 in 20,000 live births, causing skin to be so fragile that even a gentle touch can lead to painful blisters and wounds. 💔 At EBRP, we're on a mission to change that. Together, we can turn awareness into action and turn "The Worst Disease You've Never Heard Of" into "The Worst Disease That We're Curing". 💙 Learn more at ebresearch.org. | EB Research Partnership
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Did you know? Epidermolysis Bullosa is often called "The Worst …
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Spreading awareness for #EB on the streets of NYC 🦋 💖 Learning how to s…
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Rare Disease Day is Fri, Feb. 28. Join Keanu Reeves, Kristen Bell, …
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Meet Dr. Jean Tang and Dr. Anthony Oro from Stanford University. 🦋 EB…
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Thanks to the long-standing support of brave EB warriors, resilient EB f…
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"I loved every single second of his inclusion into something that he l…
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We need a treatment and a cure for children, like Rowan, living with th…
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Our Co-founders Jamie and Alex Silver talk about what it was like t…
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What's it like living with EB? Sanja in Norway (@lifewithdystrophiceb…
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A friendly reminder from Allison McGettigan, Director of Programs …
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A world without EB is one that we believe in. ❤🦋 Feeling grateful for t…
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EB Research Partnership CEO Michael Hund wants YOU to take t…
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We are heartbroken by the devastating news of the passing o…
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EPB Research | Substack
4 months ago
substack.com
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EB Research Partnership on Reels
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We’re so excited to see you at this month's Town Hall on Tuesday, Se…
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The EB community continues to inspire us every day as we work to…
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Our first Live Town Hall of 2025 was an enlightening discussion of the j…
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REMINDER: September Town Hall → patient-powered healing for DEB …
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“Things don't really always need to be elaborate. Every dollar helps. A…
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Featuring Pearl Jam's Eddie Vedder and a community fighting to cure …
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Every day we work towards finding a cure for those like Rowan, @bra…
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Together, we are unstoppable. This #EBAwarenessWeek, we’re gratef…
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