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It only takes a minute and it makes a real difference. 💙 Watch as EPB employee Gray shows just how easy it is to donate to PowerShare. A few simple clicks can help local families keep the lights on and get through unexpected hardships. 🔗 Learn more or give at epb.com/powershare | EPB
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Our first Live Town Hall of 2025 was an enlightening discussion of the journey from bench to bedside care for EB, with three insightful points of view! Hosted by EBRP CEO Michael Hund, this Town Hall featured three incredible speakers: 💙 Kate Holler, EB mom and advocate, shared her family’s journey with EB and discussed navigating the medical system, locating the right resources, and finding life-changing support. 🏥 Dr. Jamie Feinstein, University of Colorado and Children’s Hospital Colorado,
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For many years, EB Research Partnership has been working to find a cure for the rare disease Epidermolysis Bullosa, or EB. Over the last decade, we have made remarkable strides in this fight for a cure – including helping to accelerate the first two FDA approved EB treatments. We can all do our part in the fight against EB. Learn more and support by going to ebresearch.org | EB Research Partnership
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It began in silence, then came the courage to fly. Like monarchs starting their journey, Rowan and families living with EB move forward with fragile strength and unstoppable hope. This EB Awareness Week, we’re rallying together to raise $50,000 for research that brings us closer to treatments and a cure for EB. 100% of every dollar from this fundraiser goes directly to advancing EB research. 💙 Donate today: https://www.ebresearch.org/unstoppablemigration.html?utm_source=Facebook&utm_medium=orga
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Thanks to the long-standing support of brave EB warriors, resilient EB families, brilliant medical experts, and generous donors, EBRP has been able to raise $60M for critical, life-saving research and fund 140 innovative EB projects, including helping to accelerate the first two FDA approved treatments for EB. While our goal is to cure EB, the research we support and our innovative model have the potential to help advance therapies for the 7,000 rare diseases that impact 10% of the global popula
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