By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease patients depend on. Help us reach our end-of-year goal and transform more lives. | NephCure
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By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease
NephCure. . By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease patients depend on. Help us reach our end-of-year goal and transform more lives.
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summitmedicalclinic.comJul 21, 2018
ABCs of Kidney Disease | Management of Chronic Kidney Disease
ABCs of Kidney Disease | Management of Chronic Kidney Disease
YouTubeMar 7, 2023
Top videos
By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease patients depend on. Help us reach our end-of-year goal and transform more lives. | NephCure
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By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease patients depend on. Help us reach our end-of-year goal and transform more lives. | NephCure
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Intro to RKD
Intro to RKD
nephcure.org
May 6, 2024
NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. Here are a few things we do: - Online patient community - Support groups - Online resources - Personalized help navigating the healthcare system - Help patients find clinical trials - Fund groundbreaking research nephcure.org/support | NephCure
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NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. Here are a few things we do: - Online patient community - Support groups - Online resources - Personalized help navigating the healthcare system - Help patients find clinical trials - Fund groundbreaking research nephcure.org/support | NephCure
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Kidney Diseases
Kidney disease - Causes and treatment of kidney failure
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Kidney disease - Causes and treatment of kidney failure
YouTubeHealthchanneltv /
441.8K viewsFeb 21, 2013
Kidney Disease - NIDDK
Kidney Disease - NIDDK
nih.gov
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Chronic Kidney Disease, Animation
YouTubeAlila Medical Media
295.3K viewsFeb 3, 2020
By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease patients depend on. Help us reach our end-of-year goal and transform more lives. | NephCure
0:27
By supporting NephCure this month, you're investing in 25 years of proven impact. Your donation powers the research, resources, and support systems that rare kidney disease patients depend on. Help us reach our end-of-year goal and transform more lives. | NephCure
8.4K views5 months ago
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Intro to RKD
Intro to RKD
May 6, 2024
nephcure.org
NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. Here are a few things we do: - Online patient community - Support groups - Online resources - Personalized help navigating the healthcare system - Help patients find clinical trials - Fund groundbreaking research nephcure.org/support | NephCure
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NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. Here are a few things we do: - Online patient community - Support groups - Online resources - Personalized help navigating the healthcare system - Help patients find clinical trials - Fund groundbreaking research nephcure.org/support | NephCure
39.5K views7 months ago
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Families affected by a rare kidney disease aren't alone. NephCure hosts virtual support groups for adult patients, teen patients, and parents. Click to find an online support group. ❤️👉 | NephCure
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Families affected by a rare kidney disease aren't alone. NephCure hosts virtual support groups for adult patients, teen patients, and parents. Click to find an online support group. ❤️👉 | NephCure
73.6K viewsJun 6, 2024
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We love helping rare kidney disease patients and their families. Checkout NephCure.org for free support groups, patient services, recipes, downloadable resources, clinical trials & more. | NephCure
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We love helping rare kidney disease patients and their families. Checkout NephCure.org for free support groups, patient services, recipes, downloadable resources, clinical trials & more. | NephCure
39.5K views7 months ago
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What a year 2024 was! Together, we’ve made incredible strides in the fight against rare protein-spilling kidney diseases. From patient summits and advocacy wins to groundbreaking research and community connections, 2024 was a year of impact, hope, and progress. Thank you to everyone who supported us along the way—you are the heart of NephCure. | NephCure
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What a year 2024 was! Together, we’ve made incredible strides in the fight against rare protein-spilling kidney diseases. From patient summits and advocacy wins to groundbreaking research and community connections, 2024 was a year of impact, hope, and progress. Thank you to everyone who supported us along the way—you are the heart of NephCure. | NephCure
91 viewsJan 22, 2025
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NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. We’re creating a new reality where more rare kidney disease (RKD) therapies exist, and more patients get the care they need. | NephCure
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NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. We’re creating a new reality where more rare kidney disease (RKD) therapies exist, and more patients get the care they need. | NephCure
3.8K views7 months ago
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Julianne shares her journey with FSGS and how NephCure has supported her along the way. Explore our patient resources, and help us make a difference by donating today at nephcure.org/donate. | NephCure
571 views5 months ago
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Anthony, a brave 5-year-old, explains his rare diagnosis and shows us all the courage and strength kids with rare kidney diseases have every day! Let us know in the comments what gives you strength and courage in your journey! 💚 | NephCure
555 views6 months ago
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This #GivingTuesday, make a lasting impact in the fight against rare kidney disease by supporting NephCure. Whether it’s through a direct donation, launching a personal fundraiser, or requesting a matching gift from your employer, your contribution empowers critical research, supports patients and their families, and raises awareness about these life-altering conditions. To donate, please visit: https://give.nephcure.org/GivingTuesday2025 | NephCure
1.4K views4 months ago
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Meet Lisa Cimino, a mother who refused to give up when her daughter Brianna was diagnosed with a rare kidney disease. Through the challenges, she found hope and support with NephCure. In honor of our 25th anniversary, Lisa shared her family’s journey and how finding a community made all the difference. | NephCure
641 viewsFeb 26, 2025
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More clinical trials for rare kidney diseases like FSGS and IgAn are available than EVER before. | NephCure
9.4K viewsOct 8, 2019
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We’re 25! 🥳🤍 So grateful for this incredible community that’s brought us 25 years closer to a cure for rare kidney disease. | NephCure
725 views5 months ago
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1:05
Living with Nephrotic Syndrome, FSGS or another rare kidney disease can feel isolating. That's why we created a free online patient community. ❤️👉 | NephCure
27.3K views7 months ago
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0:39
2026 is going to be huge for rare kidney disease patients. 6 new therapies for rare kidney diseases have been approved. But access to medicine matters, and we're dedicated to advocating for patients. Can you help us reach our end-of-year goal so we can advocate for more patients in 2026? | NephCure
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2026 is going to be huge for rare kidney disease patients. 6 new therapies for rare kidney diseases have been approved. But access to medicine matters, and we're dedicated to advocating for patients. Can you help us reach our end-of-year goal so we can advocate for more patients in 2026? | NephCure
49.6K views5 months ago
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3:42
Meet Tyler and Jaxon Levondosky, two brothers with the same exact genetic mutation that causes a very rare, progressive (and currently untreatable) version of rare kidney disease. Both boys showed symptoms as infants, however, Jaxon wasn’t diagnosed until he was 18 months old, and Tyler at 4 years old. This particular genetic mutation is known to cause kidney failure within the first two decades of their lives. With your donations, you'll be supporting people like Jaxon and Tyler and helping fin
16.3K viewsDec 18, 2023
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The results of PARASOL were presented to the full nephrology community during ASN on Friday, October 25th, 2024. This session highlighted a comprehensive interventional data-sharing and modeling effort intended to transform the landscape of drug development for FSGS, while involving stakeholders at all stages including patients, clinicians, academics, and industry relations. To learn more about this effort and its implications, visit the full article below. https://nephcure.org/parasol-project-a
233 viewsNov 22, 2024
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What a night! ✨ This year’s Countdown to a Cure Gala was a major success! We surpassed our goal and raised over $800,000 to support families affected by rare kidney disease. With 400 guests in attendance, the evening was filled with hope, generosity, and community. We couldn’t have done it without our incredible sponsors and donors, our inspiring 2025 honorees, Andrew and Aliza, and the heart of the event, the Rivera Family, our Fund a Cure family. The Riveras shared their story of their daughte
948 views6 months ago
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Rare kidney disease has many faces. Here are a few of our amazing community members who attended the NephCure LA Walk & Community Day 💚 NephCure’s mission is to ensure that all individuals with rare, protein-spilling kidney disease have equitable access to the care and treatments that lead to the best possible kidney health outcomes. Pass the phone if you or someone you love is affected. You’re not alone! | NephCure
265 views3 months ago
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2026 is going to be huge for rare kidney disease patients. The very first medicine for FSGS is awaiting approval. And 6 therapies for other diseases have been approved. But access to medicine matters, and we're dedicated to advocating for patients. Can you help us reach our end-of-year goal so we can advocate for more patients in 2026? | NephCure
42.3K views5 months ago
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2:10
Becky's journey lead her to Kidney Health Gateway; discover what the Gateway has to offer you. | NephCure
87.5K viewsApr 2, 2019
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0:52
Say hello to seven-year-old Harper! Harper is living with Focal Segmental Glomerulosclerosis (FSGS), a rare kidney disease that causes scarring in the kidneys. If you or a loved one has been diagnosed with FSGS, you are not alone. NephCure has helped more than 40,000 people find the resources, support, and answers they need. Visit NephCure.org to learn more, and if you’re able, consider donating at NephCure.org to help children like Harper access the treatments they deserve. | NephCure
806 views3 months ago
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1:45
2026 is going to be huge for Zane and his family and other rare kidney disease patients. The very first medicine for FSGS is awaiting approval. And 6 therapies for other diseases have been approved. But access to medicine matters, and we're dedicated to advocating for patients. Can you help us reach our end-of-year goal so we can advocate for more patients in 2026? | NephCure
45.5K views5 months ago
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1:13
Shawna Robinson became a living kidney donor and changed someone’s life forever. At NephCure, we’re honored to share her story and celebrate the power of choice, compassion, and advocacy. Click below to hear her story and help us spread awareness of rare kidney disease and the impact of living donation. #KidneyDonorStory #NephCureStrong | NephCure
410 views8 months ago
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Big news in the rare kidney disease community: We are likely ONLY MONTHS away from the announcement of one of the first-ever FDA-approved treatments for rare kidney disease! 🎉🙌🥳👏 But now we're facing a new challenge: ensuring ALL patients can access new and better treatments, which means we need your support now more than ever. NephCure’s mission is: 1. Accelerate RESEARCH FOR EFFECTIVE TREATMENTS for nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases 2. Provide
12.3K viewsDec 9, 2022
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NephCure U: A C3G Update
4.4K viewsDec 8, 2022
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Today, NephCure is meeting with Congress members to discuss the New Era of Preventing End-Stage Kidney Disease Act (H.R. 6790). Our goal is to advocate for better research, diagnostics, and treatments for the rare kidney disease community. A huge thank you to our dedicated advocates and sponsors for their support! #NephCureHillDay2024 #NewEraAct #RKDCommunity | NephCure
345 viewsJul 25, 2024
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Our NephCure Specialists are a vital part of our work in assuring better treatments and care available to patients, which is why we are proud to spotlight Dr. Laura Mariani! Dr. Laura Mariani, a NephCure Specialist and nephrologist at the University of Michigan, provided insight into her current research and how it's impacting patients with rare, protein-spilling kidney diseases. With expertise in observational studies in glomerular disease, Dr. Mariani is involved in several clinical research s
16.2K viewsApr 18, 2023
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