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Day 3: things we’ve done since our daughter’s terminal diagnosis with PKAN: specialists, medication, and social media! Filmed this video at 630am before work, only to realize there was no sound, so filmed it again after a 12 hour shift…mind my appearance 🥲 #PKAN #PKANDisease #PKANAwareness #PantothenateKinaseAssociatedNeurodegeneration #RareDisease #RareDiseaseAwareness #NBIA #NBIADisorders #CurePKAN #HopeForPKAN #PKANStrong #EndPKAN #FightPKAN #RareButPrecious #RareBaby #OurPKANWarrior #BraveL
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